Information for families living with TANGO2
Whether you are navigating a new TANGO2 diagnosis, searching for more information or looking to connect with a group of carers and siblings who get it, we are here to help you navigate life with TANGO2, together.
Below are a few resources that might help or get in touch using the button below.
RESOURCES FOR FAMILIES
TANGO2 Research Foundation
The TANGO2 Research Foundation was established in 2018 and is leading the way in the search for treatments and a cure for TANGO2 deficiency disorder. The website is a treasure trove of information and inspiration, start here to find out what we know so far.
TANGO2 Australia Zoom catch ups
Sometimes the meetings are about getting things done, sometimes they are about sharing our stories and feeling seen and sometimes we just need to have a cuppa and a laugh with a likeminded group of people.
Please reach out so we can loop you in on the next one, or even better, create one to welcome you!
TANGO2 Australia family WhatsApp group
We were honest with each other about the best way to connect and WhatsApp gives us an easy way to stay in the loop without doing the dreaded email trail catch up dance.
Get in touch via the button below, we'd be happy to talk it through with you