OUR board of directors
Sarah Luck Chairperson
Sarah Luck Chairperson
Sarah Luck Chairperson
Sarah is mum to Annie, who was diagnosed in 2019 at age 2. Sarah is passionate about building TANGO2 Australia into an organisation that provides a community for those living with TANGO2 and their families, raises the profile of TANGO2 within Australia and plays a key role in research that amplifies and saves the lives of our beloved T2 warriors.
Sandi Cohen Treasurer
Sarah Luck Chairperson
Sarah Luck Chairperson
Sandi is Mum to Bec, who was diagnosed in 2024 when Bec was 30. Sandi also lost Samantha at the age of 3 to a metabolic crisis in 1990 before TANGO2 was identified.
After attending the 2024 TANGO2 Family Conference in Florida and witnessing the improvement in wellbeing of T2 warriors with early Vitamin B intervention she realised it is
Sandi is Mum to Bec, who was diagnosed in 2024 when Bec was 30. Sandi also lost Samantha at the age of 3 to a metabolic crisis in 1990 before TANGO2 was identified.
After attending the 2024 TANGO2 Family Conference in Florida and witnessing the improvement in wellbeing of T2 warriors with early Vitamin B intervention she realised it is critical to keep families and clinicians up to date with ongoing research and awareness of TANGO2.
Carmel Murphy Secretary
Carmel Murphy Secretary
Carmel Murphy Secretary
Carmel is mum to Joseph, who was diagnosed in 2024 at age 40. Joseph is one of the oldest to be diagnosed and is now benefiting from the Vitamin B therapy.
Carmel understands how rare disease can isolate families and this drives her ambition to not only connect, inform and support Australian Tango2 families but to also support vital resea
Carmel is mum to Joseph, who was diagnosed in 2024 at age 40. Joseph is one of the oldest to be diagnosed and is now benefiting from the Vitamin B therapy.
Carmel understands how rare disease can isolate families and this drives her ambition to not only connect, inform and support Australian Tango2 families but to also support vital research and raise awareness of Tango2 Disease in Australian communities.
Dave Longman Director
Carmel Murphy Secretary
Carmel Murphy Secretary
David Longman is the father of Erling, a 9-year-old boy living with TANGO2 Deficiency Disease. Following Erling’s diagnosis in 2019 at the age of two, David became an active volunteer and Board Member of the TANGO2 Research Foundation, supporting research and advocacy efforts for the global TANGO2 community.
Professionally, David is a scie
David Longman is the father of Erling, a 9-year-old boy living with TANGO2 Deficiency Disease. Following Erling’s diagnosis in 2019 at the age of two, David became an active volunteer and Board Member of the TANGO2 Research Foundation, supporting research and advocacy efforts for the global TANGO2 community.
Professionally, David is a science teacher and Head of Science with a background in medical science and research. He is passionate about advancing scientific research into TANGO2 Deficiency Disease and helping create a brighter future for individuals and families affected by this rare condition.